Showing posts with label Noonans Syndrome. Show all posts
Showing posts with label Noonans Syndrome. Show all posts

Thursday, November 15, 2007

The worst day of my life

Originally posted HERE

One year ago today was one of the worst days of my life. My baby was born... normally a good thing... but during his birth my wife was crippled. A few minutes before he was born I had a sudden chill go through my body, and I felt that something was wrong. There was no indication that anything was amiss. I just had this feeling.

When Jared was born, they immediately flew him to another hospital because he had a couple pounds of extra fluid in him. We had no warning. He had heart surgery 6 days later and was diagnosed with Noonans Syndrome. My wife couldn't even roll over in bed by herself. She was in a wheelchair for a month and then used a walker. During that same 24 hour period, my youngest boy took some poison and I stayed up all night with him. The previous week, I had taken him to the hospital twice because he was throwing up several times a day. A week or so later, my business took a belly flop and I ended up losing over $25,000. Yeah... Ouch!

It's been a year now and things have calmed down... but I'll never forget that fateful day. My wife had already been in the hospital for a month, which meant I was home with 4 little boys and working 20-hour days. The birth was supposed to be an end to our trials but it ended up compounding everything, especially since I had just recently lost my job and insurance. Jared is a sweetheart. He's now one years old, but he can't sit, crawl, or eat by himself. He has a wonderful smile, and he makes us laugh.